Mila...

Sarah gave this update on Mila last night:

Mila is home and doing fantastic. She's on an NG feeding tube for a bit, as her weight dropped from 8.3 kilos on the hospital scale to just 7.5 kilos! I'm so proud of her for coming through this like a champ. I'm just amazed.. What a miracle she is!!Of course, everything is not peaches n cream. She's still not sleeping, though we aren't feeding her from 11pm to 7am at all any more. She gets 6 feedings each of 140 mls - close to 30 ounces per day. What she doesn't bottle, I measure out of unthickened formula and put down the tube. If she drinks 4 out of the 5 oz, I just syringe in the last oz. If she leaves more, I put it in the feeding pump. I can't tell you how grateful I am to have that feeding tube & pump now.Mila has been switched to 30 calorie formula called Peptamen Jr. Its $289 bucks a case, and we will go through 5 cases a month!!!! Thankfully, since she is now at least partially tube fed, the government of Alberta / Canada will pay for all but $75 of it! They also provide us with syringes, tape, duoderm, the feeding pump, pump bags, the whole 9 yards for nothing! We also have four prescriptions going. She gets Captopril three times a day - it lowers her blood pressure and helps her heart heal. She gets Lasix twice a day to make her pee more, which takes the strain off her lungs and heart. She also gets Zantac twice a day, and Losec at night. The NG tube holds the LES open, which means that she does now, in fact, have reflux!

This morning Sarah very quickly let us know that they had to take Mila to the ER for a high fever. Obviously infection after this kind of surgery is a big deal. Please pray for Mila and her family right now!