Thursday, March 20, 2008

Updated March 20, 2008

First, I just want to wish you all a Happy Easter. We are praying for all of you who may be traveling to have a safe and fun trip!

Please continue to remember Mandy. She had a set back due to another blood clot and was in the hosiptal for a week but has returned home. Please keep Mandy and her family in your prayers as she heals and as they determine what long term treatments she may need for the colitis.

Mila is continuing to require tube feeding and is not meeting the calories she needs each day. I believe Sarah said Mila's heart is still functioning at about 50% and it may be a year of healing before she improves dramatically. Please pray Mila will gain weight and that her heart will heal completely.

Please check out the list on the sidebar and remember these families as you pray. I am specifically asking that you remember my babies on the PAGER list. Been there, done that. I know how hard these feeding therapies, food refusal, FTT and PT can be for the kidos and the parents. Pray for healing and peace for these families. Pray they will be surrounded by people who will be understanding, helpful and compassionate.

Check out Suz's blog too (Steece Quads) her little girl Savannah is having a rough time right now with kidney issues. Here is a clip of what Suz wrote about Sav's testing on her kidneys:
...she pretty much failed all parts of it. The reflux is worse on her left....but there is definitely an obstruction on the right. almost a complete obstruction. her kidneys are HUGE/ backed up with fluid. dr. pinto is out of town this week until monday. my pedi told me that he will more than likely want to get savannah in to proceed more quickly than we had anticipated. oh, and all three boys will definitely undergo renal sonograms as well. sav is doing well. you would have no idea she is in pain. she doesn't have much of an appetite, but other than that..she is all smiles and giggles.
I know how hard it can be to have a sick kid and how difficult it is to watch some of the testing being done on these sweet little ones. Please keep the Steece Family in your prayers.

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